****DISCLAIMER:

Please Note that I am neither a physician nor a social worker. Check with your physicians and/or members of your medical team before considering using any of the tools and/or strategies suggested herein.****
Showing posts with label Bibs and Bobs. Show all posts
Showing posts with label Bibs and Bobs. Show all posts

Monday, December 5, 2011

Tip #11 Bibs and Bobs; The Hokey Pokey


     "You put your right foot in, you take your right foot out, you put your right foot in and you shake it all about. You do the hokey pokey and you turn yourself around, and that's what it's all about…." - the Ram Trio 


When I was little, I used to love that song. Unfortunately I can't say that it improved my right and left decifering skills all that much (I might be hopelessly inept that way), but it was such a fun song to sing and dance to, that it has stayed with me all of these years. And what does that have to do with anything recovery related?


     Well, it all boils down to one thing… 


Don't do the hokey pokey so you can do the hokey pokey. 


Huh? Allow me to explain. The first part of the above sentence is figurative, and the latter is literal. Lets start with the figurative part first.


How you ever noticed how slippery ice and snow can be? Of course you have. I'd bet that you have especially noticed this when sprawled on your back with one foot in the car and the other under it. Not so fun I know. Here's my big tip towards preventing that in the future: remember the words to the hokey pokey, and imagine something hokey poking you should you put those words into action when you are entering a car in winter. Why?
Well, have you ever noticed that when people talk about hurting themselves when getting into their car that their story begins with "I put my right foot in, and was getting the rest of my body in the car when I slipped..." Or, "I put my foot into the car, but just on the edge so that I could bend down and brush the snow off before getting the rest of the way into the car..." It's a common thing though, as movements involving rotation of the back - especially reflex postural ones (when your body is responding to the falling threat) are big culprits of back pain and injury. This is true even if you haven't actually fallen. When you are putting just one foot in the car, you are making your back do a rotational movement and so it doesn't take much for things to go wrong.
Also, you know that when the movies show cars riding on two wheels it's clear that it's more perilous than with all four wheels on the ground? It doesn't always result in damage but the potential is there in a large way? Well, the same can be said for getting into the car the way most people do (foot then bum while twisting,then other foot). If you add to that the big risk of falling in general given pronounced weakness or instability that may be present as a result of your current health status - well, in that case you are just asking for trouble.

So then, what do we do? Refuse to go anywhere that involves traveling by car in the winter? No, of course not!!!! But, there is a fairly easy remedy; put your bum in the car first. What? With both feet on the ground, face the driver seat with your bum. When you feel the seat at the back of your knees, plop your bum down. Watch your head if you are not used to getting in this way:). Now, once your bum is in, brush the snow off your legs to your heart's content and then bring your legs around carefully, turning your body all at once.Take the same precautions on your way out, remembering to scoot your bum to the edge of the seat before trying to stand (for better control and balance). Don't forget to ask your physician or physiotherapist before changing the way that you do something like this to ensure it is the right thing for you.
Of course this all gets trickier when we look at how big and high off the ground so many of today's vehicles are, but the same principles apply (i.e.turn your entire body towards the open car door, and put both feet on the ground before standing). You may need a little extra help from someone until you have it working smoothly, (or indefinitely if needed, but let's focus on the "till smoothly" plan). Still, there is no shame in asking for help. I'm sure that even if you didn't want to have to inconvenience your spouse or other caregiver at all by always asking for assistance for this, they'd be a whole lot happier assisting you in/out of a vehicle safely than having you in copious amounts of pain and doing another hospital trip too). Otherwise, you may find that many large vehicles have running boards and other aids to help people get into big vehicles, but be careful because they can also be a challenge in terms of balance for some. Ask for help if you need it, and, obviously, don't if you don't, and always ask for a spotter if you just aren't sure.
Okay, so, winding things up I say this: don't enter your vehicle all hooky-poke-i-ly-like by sticking a leg in, or putting it back in and out to brush off the snow. Instead, lead with your bum. Now you can brush off snow to your hearts content, and then turn your whole body in to face the steering wheel. It isn't hard, it's just hard to remember to do sometimes.
And the literal part of the hokey pokey I mentioned? Well, if you are putting the suggested methods above into place, you stand not only a better chance of feeling better, stronger, and in less pain than if you had added a fall to your current medical state, but it might actually be possible to do something fun in the absence of a fall. Like what you ask? Like finding a child(ren) you love and doing the REAL hokey pokey with them. What better gift can you give yourself than that of doing silly and fun things with a child? And don't forget to laugh while you are doing the actions with them, "'cause that's what it's all about!"

Happy bum leading!







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Tuesday, November 29, 2011

Tip #99 Bibs and Bobs; Christmas Prep II: Shop with No Drop

    Yes, I know it's supposed to be "Shop till you drop" not "with no drop," but my best guess is that you already have dropped.  Well, you know what I mean… If you are someone who is recovering at home or caregiving for someone thereof, there are many barriers to celebrating the holidays, and for celebrating others too. Part I of Christmas Prep (click here) talks about our expectations about Christmas and prioritizing that which is most special as well as some ideas about how we celebrate it (and how we communicate with loved ones about how we celebrate it).
     Today's post, (Part II of Christmas Prep) addresses other ways to buy presents from home for those of you who do exchange gifts. Being 100% bedridden for the last few years, I have had to be creative about doing my Christmas shopping. Well, but, bedridden or not, if you are healing or taking care of a loved on (or both), your ability to go out and about may be compromized, and getting around a large mall can be near to impossible at times. Given that, here are a few general tips about shopping on line:
  • Before ordering anything online, check the 
    • Site Location: Are you on the right site? I've been on amazon.com instead of amazon.ca (US vs. Canada), gotten excited about my purchase, and then realized that I couldn't get it in Canada. 
    • Delivery Time: Will it get there in time for Christmas  (sometimes it's in the fine print), and does that still apply if you live in a rural location (another lesson learned….)
    • Delivery Fees: A lot of companies will advertise free delivery, but sometimes this only applies to:
      • Gifts reaching a target total (free if you spend $35 or more…)
      • Gifts with a certain criteria of availability (if you want the packages of your multiple package order to arrive as the items are available it's free, but if you want it all at once, it's not (and sometimes it's the reverse that's true)).
      • People who select that option. I'm sorry to say I've fallen prey to this a couple of times. I'm excited that my order "qualifies" for free shipping, but when we get to the part about shipping, I don't actually select this shipping version, and so I end up with a delivery cost.
    • Delivery Specifics: For us, packages arrive at the post office, and the post office is only open at certain times (we live in a rural location). So, although someone guarentees they can get it to you for the 24th, is your post office open on the 24th?
    • Delivery Progress: Can you track the delivery online? It's reassuring to know where it is! 
    • Return Policies: Make sure:
      • You know who is supposed to pay the postage for something you have to return; you or them?
      • For many products if you open the box, but don't like what you got, it is not returnable. It's only returnable if you haven't open the box, or you have and the product is defective.
      • If you've paid any other way than by VISA or MasterCard, make sure that it does not effect your ability to get a return
    • Payment Method: Do you trust the site in question? Do you trust your computer's security abilities? A good idea is to set up a PayPal account or something similar (so you are not giving each and every vendor your credit card). It's very easy, very secure, and quick to set up.
  • Places to consider ordering: I've had success with all of the following:
    • Amazon (Again, just make sure you're on the site for the country in which you live)
      • Super speedy delivery
      • Free delivery options
      • Lots of variety (not just books!)
      • Gifts for all price points
      • Certificates available
    • Blurb (a fun and easy to use photo book company)
      • Very reasonable prices
      • Your photos, arranged by you, or by them, or electronically (instantly)
      • Speedy affordable delivery
      • Great price points, lots of options
      • Certificates available
    • Choccreate (Amazing chocolate bars that you design, they make) I love this!!
      • Small company with great personal touch
      • Good quality chocolates, and you add fruits, spices, even bacon….)
      • Very affordable, very yummy, very unique
      • Great delivery times
      • Certificates available
    • Old Navy (Clothing Store)
      • This is new to me and I just ordered, and it was great
      • Lots of great sale sections
      • Free delivery options
      • Great price points
      • Infants and up
    • Apple (If you are just tuning in, I'm an apple-a-holic)
      • Lots of selection, though a lot of it expensive!
      • Great delivery
    • Staples (yep, the office supply store)
      • Geeks like me love office supplies
      • Cute little girl gifts (like a stick-it-note pad that is pink, and hanging out a a purse, which doubles as a paperweight)
      • Lots of candy gifts (especially nice at Christmas!)
      • Love their delivery, return, and speedy service!
      • Lots of games for the gamers in your life
     So, there you have it. Yes, I know some of those sites are common to many, and yet I am constantly amazed that so many people I know are intimidated about ordering online, or who have never considered that doing so is an option. I have also been told that some of it stems from not knowing someone who has been to that particular site, or shopped online at all and succeeded. Fair enough. But, sometimes it's worth it to try - just mind the pitfalls noted above wherever you shop.  In my experience, the stores above have been fantastic - you just have to think out of the box a bit (like getting a little girl present at an office supply store). 
     Can you see why I say shop with no drop? It is truly possible to give unique gifts (I highly recommend blurb and choccreate for that), and the popular items that so many ask for too, without having to leave your house! That's my kind of shopping!

Happy ordering!


  












Sunday, November 20, 2011

Tip #457 Bibs and Bobs; Christmas Prep I: Great Expectations

     Here we are nearly at the end of November - how on earth did that happen? Know what that means? Well, if you're at home because you are recovering or caregiving for someone recovering, the end of November might mean something different to you than to someone else… and that might be stressing you out. And, that's not good. 
     Yes, of course we're talking about Christmas. I know that Christmas means something different to everyone, and that other cultures celebrate different things at different times, but I celebrate Christmas so I will speak to Christmas. For us, Christmas truly is the center of our faith (we believe Jesus was born on this day, for the whole world). Having said that, we also like to celebrate with those we love and appreciate greatly, and we do this with gifts (gifts we buy, and gifts we don't). And, as I am sure  you know - that isn't easy if you're home and not able to be out and about, or lacking energy, time, and resources.
    Have no fear, though, there are some ways to make a cheerful Christmas a little easier. It all ends and ends with Expectations. Great Expectations - and not the Charles Dickens kind either. No, I didn't mean begins and ends, I truly meant ends and ends. I don't know if you've noticed, but many people (especially women - I'm allowed to say it because I am one:)) expect the unattainable no matter how able-bodied they are. And that just isn't good for anyone. But if you have reasonable (and I really do mean reasonable!), attainable, practical expectations, you're not so focused on what's not working out, and that leaves you the ability to actually experience the joy in it all - especially in what is working out (like having fun). How is this possible? Well, it starts with a state of mind I think. Consider the following:  
  • Of course, the top tip is to consider what the day means for you and how you want to celebrate it. Is it about the gifts only, or is it about family, faith, a combination thereof or something else entirely? 
    • If all that matters to you is that you spend time with those you love, maybe have a meal together, go to church together, sing carols in your living room, or order Chinese and play board games together. But don't forget to communicate and compromise…
      • BIG HINT (re the compromise, the communications, and your expectations): Your loved ones love you (obviously), so don't get bogged down because they and you have not been discussing the details! If you are recovering, or you are taking care of someone recovering, logic and love says to them that you might not want everyone at your house. In the mean time, if your great expectation is that they will come to you of course - since you can't go to them. Or, perhaps you figure one day of exhaustion is worth it for this occasion, no matter the consequences (like needing to sleep for a week). Logic and love don't always go hand in hand the way everyone thinks they should. Don't be shy; discuss the details. You'll be thankful you did! And, hopefully, with good communication a good compromise can be agreed upon - whatever that looks like in your family.
  • Or, maybe this new situation/status is an opportunity to not only reflect on what is truly important and to work towards some agreed on adventures, instead of what you normally do with all the hustle and bustle and planning. 
    • Perhaps you will decided to serve others together:
      • Like working at Samaritan's purse where you put together shoe boxes with care essentials and toys for children in need in countries around the world. 
      • Or, maybe picking a family in your community who could use some extra help this year, and helping them out. 
  • Or, maybe this year is an opportunity to scale back on something that has grown into excess. 
  • Whatever you do, remember that getting stronger and healthier is the best gift you can give to others who love you, and to yourself too.
  • Remember that simple is good. 
    • If you'd normally make each and every morsel that comes across your table, don't be ashamed to buy it this year, or do significantly less or a combination thereof. 
    • If you'd normally donate to certain places or people but find that you cannot afford to do so due to loss of income, or income going to medical bills, etc, there is no shame in that either. A call or a thank you card can go very very far in showing someone or an organization that has helped you (or that you are normally involved in) that you appreciate them.
    • If you normally write cards to all and sundry, and don't have the energy this year - don't. They'll live without them, and you'll live too. 
    • Ask for help. No man is an island, despite what society tries to convince you!
     In the end, it all boils down to expectations. If you are planning on trying to match the expectations you've had of yourselves in prior years when you've been healthy, or not focused on caregiving, or you think others have (or do have) of you  - don't. My lovely Mom-in-Law told me one year that: 
"We all have turns. This year is your turn. Next year might be my turn, or some other family member or friend's turn - but we all have turns in life where we can't do what we'd like to do (and/or what we usually do). This year is your turn. That's the way life happens, and that's okay. Eventually we all take our turn, and you'll help when someone else has their turn." 
And I believe it. 
     Given that, allow me to say that this year is YOUR turn reader. Yep. Your turn. Claim it. Be okay with it. Be unapologetic about it. In the years since she's said that, I've given that advice to many (ill or just overwhelmed), and taken it myself. And you know what? It ends up being an even better year for them, it has been for me, and I am hoping it will do the same for you! Wise advice Mom-in-law, thanks!
     Remember that I said for us, part of our Christmas is that we personally also like to celebrate with those we love and appreciate greatly, and we do this with both gifts we buy, and gifts we don't buy? I hope that this post gets you thinking about your expectations around Christmas - especially the gifts you don't buy. And for the gifts you do buy? Well, if you decided that there are gifts you would like to give to those you love, but are still not up and about much, Stay tuned for Part II, "Shop with NO Drop." 

Happy Expecting Differently!


     






Tuesday, October 25, 2011

Tip #330 Patience Patients; Zzzzzzz's via Your A, B, C's

     What can feel worse than not being able to get to sleep when you know you need it most? Whether you are a caregiver or someone who is recovering from serious illness or trauma, I think there is only one answer: Knowing you are not going to be able to sleep when you need it so badly. It doesn't seem to be a big distinction I know, but I think it is. How so?
     Well, for starters, knowing you can't sleep is like knowing you're going to get stitches (and lets say without any freezing just for fun) at some point in the evening. You don't know when it will happen exactly, but you think about it, wait for it, and psych yourself up for it, telling yourself it will be fine. You are nervous about it, and frustrated that it hasn't happened yet, but you are okay. Then, three more hours pass without a word, and your restlessness is starting to get out of hand. So now I ask you this: What is worse? Is the procedure worse if you've been focusing on it - preparing for it all night, or is the pain of actually getting those stitches worse?
     Well, I know that I find it easier to jump off a 40 foot bridge into water if I haven't been staring down at the water for 10 minutes. For me it is easier to jump when you haven't deliberated too much. So, I'd say the anticipation of the event is more often worse than the event itself - for bridges, for stitches, and of course, for sleeping too! (By the way, I used to think I was invincible and did all sorts of thing like bridge jumping, etc. I do NOT recommend it, nor do I recommend that you never think about consequences before making decisions. In my case I knew I was making that jump. The decision was made - it was just the logistics of it that were up for grabs!).
     So, speaking of logistics - some would say that accepting the probability of not being able to go to sleep (or back to sleep) is self-defeating, and you'll never get a good night's sleep if you think that way. While I agree that pessimism isn't generally all that helpful, I don't think accepting a troublesome fact is pessimistic - just realistic, and ideally that realism is still paired with hope for the best outcome.
So then, why do I believe that accepting that you are having trouble sleeping can be a good thing? It's hard to fight something you can't see or acknowledge (of course accepting trouble sleeping as a fact is only helpful if you are actually are having trouble sleeping! LOL!). Okay, so if it is actually an issue, consider sleeping as a parallel to knowing you are going to jump off that bridge; you've acknowledged what will in all likelihood happen when you go to sleep (jump), and all that's left to do then is to figure out the logistics. Of course, each night can be different- as can the outcome of every jump. But in both cases, practicing helps.
     For instance, for me - a lack of sleep is usually related to not being able to shut my brain down. Therefore, much like you do with a toddler when you want to help them lose their tears and be happy again - I use distraction. How? With the alphabet. Yep, I did say the alphabet. The alphabet method may not be the right method for you, but what do you have to lose if you try it? You're certainly not going to be missing sleep over it! So, here's the deal:
1) Pick a broad category. For example fruits and vegetables, or cars and trucks, or people you are related to, or TV shows, etc.
2) Starting at any letter you want (I usually start with m for some reason), name two or three things within the category. So, my fruit and veggie words go like this: melon, mango, mushroom.....
3) Work at it like it is something you want to really do well at - try not to quit just because you can't think of anything for certain letters; just move along to the next letter.
4) Count them.You don't need to do so, but counting keeps me more focused and more motivated. I get a point per word, and lose a point for each letter for which I can't come up with an answer. Before you ask, yes, I am aware of how silly and crazy that sounds, but it is what it is:)
     I hope this method will be a good tool in your go-to-sleep-arsenal for you. Barring that, I hope you find all sorts of heathy distractions, and that sleeping becomes easier each night. Of course nothing will be perfect 100% of the time, so don't expect perfection. There should be no pressure on yourself if any technique, coping strategy, person, or situation isn't cooperating with your efforts in that direction. If it's not working, just put it away, and use a different tool for now.
     Personally, I have used this strategy many many times, with varied categories over the years - it doesn't always work, but even when it doesn't get me to sleep, it gets me thinking about more relaxing things, which in itself is a great relief. I have done this with categories such as girl names, school subjects, names of atoms, songs, scriptures, animals (one for domestic, one for wild), and things that I love about people in my life.
     Do you know the category that works best for me? Blessing counting. I am aware that it might sound trite or cheesy to say so, but it's true. It works well in helping me get to sleep or get back to sleep, because it truly makes me feel better, not just sleep better. It becomes my stored-in-my-head gratitude list of things to thank God for, both in ordinary life, and amidst turmoil too.

And, of course - I do it alphabetically, and starting with the letter m.

Happy A, B, Zzzzeee-ing!

Thursday, September 15, 2011

Tip #407 Bibs and Bobs; Hairum Scar'em Part II

     For those of you who missed the first Hair'em Scar'em post, let me tell you that I know the spelling is wrong, but the gist is that my "hair, umm, scares, 'em" sometimes, and scares me often when I am quite ill. There's not much that can make you feel as amazing as having a clean scalp when you feel miserable, and so the Part I post deals with logistics. Logistics like how to wash hair in bed, from the counter, at the tub, and items you can buy retail to help you with that endeavour, no matter what your mobility (or the mobility of the one you are caring for) situation is at any given time. I know having 2 posts on hair seems a little trivial, maybe over done? But I'm okay with that, 'cause after many surgeries, many immobile times, and much time on bed rest I have to say that it's a really important thing, at least for a girl, and maybe for a boy? But, I will leave it at that.
     So, Part II is all about products and services. You likely have a routine that involves specific products, or non-specific products if you don't mind getting whatever is on sale. I find that, for a lack of a better word "trauma" hair, behaves differently, and requires some extra TLC. I have very long, uncoloured, non-grey hair but still find it a little high maintenance when ill, so I will try to include what I personally know, and what I've gleaned from others professionally. IT'S A VERY LONG POST with a lot of info, so I've tried to highlight items for you so you can skim to find what you want. Luckily for me, one of my attendant care pros happens to be a hairdresser too. Ms. J. shared lots of great info with me. Thanks Ms. J! So here goes:

  • Some salons will come to you
    • There are some hairdressers who have an in-home salon business. Try googling "in home hairdressing, or home hairdressing, or mobile hairdressing in your area. 
    • It might sound crazy, but I have seen many hairdressers come to 'regular customer' houses (maybe Joe blow out of the blue won't come if they don't know you, but you can always ask). And/or if yours won't come, ask if your hairdresser knows someone who could/would come
    • Consider tipping very well if your hairdresser does come to you, (some don't come back if not, but many do). 
    • Student hairdressers are often keen too - they're often just happy to have a head to practise on! Try googling hairdressing schools in your area, or check with your city business listings on the city's main page (most have an option for a search, and only include local - less to muck through to find what you want that way).
    • Reconsider your expectations. Do you really need it cut every 6 weeks, or is every 10 weeks okay? For those of you who die your hair, do you care right now? Could you and a friend use the boxed kind, so you only required a cut from the professional who is graciously coming to your home? I know that for a good year I couldn't sit up for more than about two minutes, so we did a lot of "simplistic" cuts (still nice because done by a hairdresser, but started sitting, finished while laying, or just one layer instead of a few, or a straight cut, etc). Any improvement is a good improvement and feels good under those circumstances.
  • Cutting it all off isn't always easier...You might think so, but not not necessarily.
    • Shorter hair is harder to style and (in my opinion) requires more time and more effort. Long is nice... braid it, stick it in an elastic, get it out and off your face. Personal preference I guess, but long is handy in my books.
    • If you have a neck injury or people regularly working on your neck, it's harder to have middle-length hair. Shorter or long is good, but middle not so much; for therapists, and for you (gets gunky, pulled, etc).
    • I do have to say though that you should maybe prepare yourself for having to cut a bunch off in terms of having healthy hair. Sometimes meds make it very gross and cutting is the only option. So sorry if that's the case, but, it does grow back.....
  • Washing tips 
    • Wanna know the best invention since sliced bread? Earplugs! They are a joyous invention!!  The thing I hate most about someone else washing my hair is that it's so easy to get water in your ear, and so hard to get it back out again! Especially if you are trying to avoid water going down somewhere because of a dressing, IV, or anything that can't get wet. Ah, wearing an earplug or two makes such a difference....
    • Turns out that it's better not to wash your hair everyday. Every other day is actually better for your hair. Who knew? 
    • You don't have to wash all of your hair, it's actually better for your hair if you only wash the roots (and let the soap clean the rest as you are rinsing). Takes a lot of time off the process too.
    • There are now some "dry" shampoo like products, that don't require you to conventionally "wash" your hair with water and shampoo. I was VERY excited about the Tresemme dry hair wash and tried it out recently. It's a mousse, and you put some in your hair, and towel "any of the greasy spots" and let it dry. It might work for you, but I however, found it to smell like baby barf, and my hair looked worse not better. Not a fan at all, and I haven't convinced anyone else to take it and try it themselves. Not a popular choice apparently.
  • Conditioning tips 
    • All conditioners are not created equally. 
      • Some detangle, or are supposed to, some don't. I find that conditioners targeted to dry hair are best when your hair is unhappy with your illness. I have tried many, and I find Pantene helps detangle more than any other, and works really really well. 
      • If you can't be mobile/upright long enough for your hair to be conditioned, there are leave in conditioners that are great. There are pump ones (infusium, pantene, etc), and some cream ones too. I find the pantene cream the best for conditioning, but that if you use too much, it makes your hair greasy, which defeats the whole purposed. So, I usually use the pump pantene instead most of the time.
      • If you specifically need a detangler, then good ole' Johnson and Johnson's pump "No more tangles" is a great choice. It's not often at the grocery stores but Walmart and baby places usually carry it. Again, pantene has a nice one - I switch them up. 
      • NOTE: DANGER When using the pump versions of detanglers/conditioners, be careful!!! Lay a towel on the floor behind you if possible before using the pump kinds because conditioners (as it turns out) often have floor wax ingredients in them. We didn't know this for a while, and our bathroom became much like the scene from "Risky business." Lots of floor sliding, and a lot of funny scenes, but, fortunately no accidents when they were easily possible.  
      • Alberto VO5 hot oil treatments. I used this product while in high school (oh, maybe 20 years ago as sad as that is to say...), and it still works as great as ever. It's not an every day solution, but it's very quick. Put it in dry hair, sit for a minute, wash (with shampoo) it out, and presto magico... softer, more manageable hair, that adds maybe 2 minutes to the time you must be upright to wash your hair. Good deal.
  • Skin issues
      • Eczema. dandruff, psoriasis, dry skin, acne.... they are not lovely words, but if you are prone to experiencing them, then your current status might bring them to the surface again, and in full force. Sorry. Not so fun, but you're not doing anything wrong...
      • Ask your Doctor if you need a prescription, but in the mean time, there are a lot of "tea tree oil" products that many find success with. There are all sorts of Head and Shoulder/Selsun blue anti-dandruff shampoos, and unfortunately, my experience is that you need to try them and find what works for you. A small heads up - the tea tree oil products are usually natural which is nice, but I find it stings, and some stink... You might think differently though 
  • Styling Tip
    • Yep, tip. Just one. I have recently learned that a bobby pin is an amazing styling tool, and easy to implement with just one hand. When you are used to drying your hair a certain way, and then are too ill to sit and dry it with the blow-dryer, then letting it dry over a few hours can play wreak havoc with your style. I'm no style-mogul, or style-anything, but I have recently learned and appreciated the power of the bobby pin. Thanks Ms. L. While wet, you use the bobby pin the pull your bangs down flat for example, and when it's dry and you remove the pin - your bangs will stay much nicer, and closer to where you wanted them. I suppose everyone's hair is different, but turns out I've learned that many of my friends already do this, I was just behind the times.... not overly surprising!!
Well, that's it. Finally. Hooray to those of you who made it this far. Hope there's at least a little something you were able to glean to feel cleaner and/or better about things.

Happy Hair, umm, not Scare-ing 'em!

Monday, September 12, 2011

Tip # 333 Bibs and Bobs; Hairem Scare'm Part I: Logistics

     I know, it's supposed to be "Harum Scarum" not Hair'em Scare'm, but when have I ever followed convention? Besides, I'm not actually talking about recklessness, or the band, I'm talking about hair. Actual hair. As in my-hair, um, scares-em.
     What? Well, when you (or the one you are caring for) are so very ill, any small thing that can make a big impact on state of mind is not just great, it's amazing! When you're in a blaze blue hospital gown, it's easy to feel unattractive, and it's common to feel vulnerable. And dirty. Hospitals are crawling with germs and ick, and for many this is hard to come to grips with. Or, you're back at home and you need others to help you clean and change dressings, or help toilet you, etc., and that's doesn't feel so attractive either, and then you've got greasy unkempt hair to boot... how frustrating! Well, you get the gist. So, a small thing like brushed or especially washed hair is a little thing that can make a huge difference.
     Oh, and, for the record, I'm a girl. So, I don't really think that hair is a small thing!  I have been only 2 days out of the ICU (and back into the regular ward), and asked 4 people to hold me up I could stand and dunk my very long hair into the sink. It was exhausting, but every bit of discomfort was worth it for how good it made me feel! So, with that let's look at some tips, and tricks for accomplishing the clean hair goal for the "Ah-there's-no-feeling-like-being-clean-in-the-midst-of-all-of-this" look.
  • Washing hair in a bed
    • In hospital they often wash your hair in bed with this kind of device, but there's no reason you can't purchase it and use it at home.
    • Fancy frugal home situation? Put some towels on the floor, and an empty bucket, have a couple of pitchers of water, and you're ready. Hold person's head over the edge of the bed (still face up, while they are laying on their back), and make sure one hand is always keeping the head supported while the other is used for washing and rinsing. This method is so much more helpful if you have assistance, but doable without as well. 
  • Washing hair at sink
    • From sitting
      • Sit a telephone book or a pillow under your bum to raise you up a bit higher (but make sure sturdy and safe first - and with a spotter).
      • Invest in a spray rinser for your sink if possible. If not, fill a couple of pitchers with water before you start so that when it is time to rinse you don't have to keep moving your head out of the sink to fill it all up
      • get a perching stool so you can adjust the height easily (and most let you tilt forward a bit, which is helpful for putting your head in the sink
      • Buy a portable shampoo bowl  . It converts your regular sink into the type that is used is salons.
    • While laying
      • Yes, that is really what I wanted to say. I have had my hair washed many-a-time from the counter. Yep, laying on the counter. Now, I can't recommend you do that as it isn't exactly safe for some, but if you have the appropriate assistance (at least 2 people helping) it may be an option - I'm still not advocating it though:)!!!
  • Using the Bathtub
    • At the tub
      • Use a perching stool or a simple bath stool (since they are adjustable) or some other kind of safe chair or stool on the outside of tub. Then, lean down, and put your head over the side of the tub while someone uses a sprayer or jugs of water to wash and rinse hair.
    • In the tub
      • If sitting in tub, have someone fill jugs of water from the sink and pour it over your hair so you can wash and rinse it. 
     Okay, so we have the logistics of it all covered. But, there's more. A lot more. So, I will continue this post soon in "Hairem Scare'm Part II." There are all sorts of things that one can do to make person feel better about both appearance and non-ickiness, several of which relate to - you guessed it - hair. So stay tuned for info about dry shampoo products, getting someone to come to you to cut your hair, how earplugs can make you joyful, and some other bibs and bobs too.
     With that I'll say goodnight for now, and hope that there's enough info here to help you feel a little less "scare' em" and a lot more "hair - yum,"

Happy Washing!




Wednesday, April 6, 2011

Tip #274 Bibs and Bobs; Don't Drink and Write?

     I know - it's a bizarre title for a post. Just to be clear, there is no drinking going on here, nor drinking and writing! But, I can see how you might have wondered if I was, had you read my last post (about your Inukshuk). I started to write the post last night, and I wanted to get it up and running before I forgot the points I wanted to make. Towards the end of the post I got so tired that I kept waking up to find the computer on my lap with the post box open. I'd reread the paragraph, type a few words and the next thing I knew - I was once again waking up with the post box open in front of me!
     Imagine my surprise this morning when I woke up and couldn't remember closing the computer or whether or not I had posted the post. Guess what? Somewhere in my dreamy-land brain I must have decided the post was ready to go. In my much more awake state this morning I looked at it and decided "ready" wasn't a word I could use to describe the post.
     What did I do then? I laughed. After the laughing settled, I sat down and rewrote the part I had written while in la-la land. So, sorry to those of you who may have been confused... apparently I was confused too!
     Not that everything has to be a lesson, but if there was one to learn here, I'd say that it was to "sleep responsibly"in order to prevent recurrences of the "drinking and writing" style of posting, or any equivalent thereof in life. But how does one sleep responsibly? You do whatever it takes to get the sleep you desperately need to heal and to cope. While those "whatever it takes" items are different for everyone, there are always commonalities such as carving out enough (or any) self-care time in the day, rearranging the timing of some medications (but working with the pharmacist or physician to do so), working through anxiety, stress, and so many other items.
     So, how about we make a deal? You ask (and answer) yourself about what you need to do in order to "sleep responsibly" and I'll ask myself. Then, how about we each work on even just one item from our respective lists that would help us meet that goal. In the mean time, please laugh at me for my silliness, and if you don't already - practice laughing at yourself in this kind of situation, too.  It really does feel so much better to laugh than to feel embarrassed, to regroup rather than avoid, and to work towards good goals rather than sticking our heads in the sand.
     With that I'll say goodnight, and which you a fantastic night of sleeping, and a wonderful happy and sunshiny-day tomorrow!

Happy Responsibly-ing!!

Sunday, March 6, 2011

Tip #92 Bibs and Bobs; Tuburlosis

     Tuburlosis? It's pronounced Toob-yure-low-sis. What is it?  It is the word that my hubby Brad made up to describe having too many tubes and cords coming out of oneself, attached to oneself, or surrounding oneself. Well, actually, it's generally used to define a combination of the above, and is specific to said tubes being tangled (inconveniently I might add!). What did Shakespeare say? Oh what a tangled web we weave, when first we practice to, er, um, rely on medical equipment to sustain us? Okay, so I'm no Shakespeare, but who knows - maybe someday people will use the word tuburlosis as often as they quote one of his least known passages. A girl can dream...
     What made Brad coin the phrase? There are two reasons; a) because Brad is fun and it makes us laugh, and b) because it quickly conveys the need to stop and regroup before tubes are pulled out of me accidentally. It is a word that conveys an urgency to fix that issue quickly - which is especially important when I start to stand up. "Ttuburlosis" just seems more fitting than "Oops, careful - hold on a second, no, oh no  -  oh bring the computer back to my lap please, it's caught on my IV tubing, which, incidentally, seems to be tangled in the feed line." Way more fitting!
     We've had some tuburlosis near misses, which doesn't seem all that odd when on a typical day you'll find IV lines, a feeding tube and it's lines, the iPhone (and the headphones and charging cord that go with it), and the computer - on me, attached to me or in bed with me. And those are just the basics! At different times in the day we add the blood pressure monitor, and I've had a heart monitor (which delightfully had 3 cords for lickety-split tangling), the camera and/or card reader, and the cord that has a fancy name that I can't remember at the moment that makes the TV become my computer monitor. Tuburlosis indeed!
     Now, if we could only come up with a word for the daily accessories that I lose in the "magic covers (magic because they are really good at making things disappear, even if I've just used said items)." When the phone rings, or the iPhone alarms, for example, I end up searching said magic covers for the item I think is demanding attention. But that is harder than it looks! Have you ever noticed just how many technical items are small and black? The iPhone, the TV remote, the portable phone, the heart monitor (which was only for a while but was the bane of my universe), and the walkie-talkie (to reach Brad in the barn). And if that weren't enough, have you ever noticed just how many small black non-technical items we use day to day? At first glance the black pencil case, black glasses case, and black blood sugar testing kit look a lot like the technical items. Crazy I tell you!
     With all the colours in the world, and all the materials the earth provides, does it ever strike you as odd that as a society we want all of our stuff to look the same? The only time this mistaken-identity scenario pays off is when I accidentally find an item one of the other items is prompting me to use. So, when the iPhone alarms to tell me it's time to take my blood sugar, as long as I make a mental connection to what the alarm was prompting me for, it's just as well that I accidentally pick up the blood sugar kit in it's stead!
     My mother-in-law makes me laugh a lot - she's quite funny. She tells me that whenever she calls me from her house, she pictures the goings-on in this house in her mind, and it gives her a good giggle. She's been here enough times to accurately picture me digging through the covers, madly tossing small black items out of my way, whilst I frantically try to disentangle myself from the state of tuburlosis. And if that isn't silly enough, I find that the object in question (the phone in this instance) is usually slightly out of reach somewhere in the magic covers because I tossed it out of the way the last time I was madly searching said covers for something else small and black. It really is fairly comical to see, and usually to experience (usually, because sometimes it drives me nuts!).
    The solution? Unless you can somehow either:

  • Cut down on what is in you or on you instantly (you'd have to recover miraculously with a snap of the fingers to make that happen), or
  • Cut down on what is around you (less devices), or 
  • Colour code all of your small black items, or maybe 
  • Invent a device that does all of the functions you need it to? Improbable if not impossible, or 
  • Put a spell on the covers to make them less magical
then I'm afraid you're out of luck... you too may be stuck with a state of tuburlosis and, well, lets call it small-black-item-itis.
     So, in the absence of changing your circumstances, I suggest you change your outlook; declare a diagnosis of tuburlosis, small-black-item-itis, or some other word you invent to describe that which is the bane of your universe. Then, try to sit back, giggle at yourself, and encourage others to join in. To us, it's a much better state of being!

Happy inventing!


  

Wednesday, February 16, 2011

Tip #33 Patience Patients: Playing the Pain Game (with a small addendum)

Okay, so here's a little addendum to this post: I wrote it last night while in considerable pain, so it seemed fitting. I neglected to mention in the first sentence that the game I talk about the entire time is the pain game:)

     If it were a board-game sold in a game store, I don't think you'd find a line up of people waiting for their chance to buy one. Unless you're some kind of masochist that is... but I'm not, so I don't want it. Unfortunately for me (and for many of you or your loved ones I'm sure), the game store fairies have decided that we are going to play their game anyway. Darn fairies....
     What does one do with a game one does not like? Ever hear the line "If you can't beat them, join them?" Call me crazy, but I say joining is not an option. Winning must happen at any cost. So, when in hospital to get a new IV started, I will force myself not to blink, while staring into the eyes of the medical personnel. When I dislocate a shoulder, I make sure you can't see the pain on my face. When I can't sleep because of he pain, I have a little talk with the pain and make sure the pain knows that it can't make a home here - I am not letting it control my life. My faith in God is what ultimately gives me relief and comfort, and makes it easier to cope with the pain and the situation as a whole. And, because of that faith, when I can't do everything I want to or need to do,  it gives me the strength to do the things I can.
     Now, the one hitch with the pain game that makes me especially successful at it is that it's my prerogative to change the rules whenever I want - as each situation is a bit different:) . The only non-negotiable rule is that the pain can't win. Sometimes this means giving into the crying that can come when the pain has been feeling unmanageable for a few days, or allowing myself to be frustrated and/or sad that the pain is here at all. I'd like to add a caveat to that though -  I don't think it's healthy to spend all day each day focusing on the pain. If this is the case for you, perhaps a meeting with the family physician/specialist/pharmacist/ is in order. Know however that I say all of that while recognizing that the pain is going to have an effect on my quality of life each day, and some days are going to be worse than others. All of that aside and back to the non-negotiable winning against pain, I am also comforted to  know that whatever particular type of agonizing pain I have, well, it is not going to be forever. Tomorrow will be better (unless it's really not better. In that case I try again to say the pain will be better the following day).  Fortunately for me (and as I said above), it's my prerogative to change the rules or the details associated with the pain game any time I want.  I feel okay with that (undefeated) because it shows that I have at least some semblance of control over how I respond to the pain (even if I can't change the nature of the pain itself). It's good to feel like you can so something at all with respect to pain.
      So, I don't know what kind of game will help you (if any will at all), but that's what I do, so I thought I'd share it in the off chance that it may be helpful to you as you wage your own battle with pain. I want to qualify that and say that I do not stop taking pain meds, or rejecting medical advice in my battle with pain... Instead, I think it's smart to use whatever resources you have in your arsenal that will help you cope with your pain. To me, the pain game is simply one more piece of ammunition alongside whatever meds I need, and treatment (like physio) I get. Does anyone else out there play the pain game? If you do, you're not alone, and (I may be biased here), you are not crazy!
  
 Happy winning!

Sunday, January 23, 2011

Tip #65 Bibs and Bobs: Germs, You're Outta Here!

     It hasn't been that long since we've addressed germs with respect to visitors (Tip #224 Greet visitors and Stay Healthy), but that post focused mainly on the importance of industrial strength hand-sanitizer and how to go about getting people to use it. In this post, I just want to remind you of some of the small things you can do to stay healthy. Why so much of a focus on all the germ stuff? It is a act that we are all in contact with germs each day, people get sick or they don't and then the world goes on....  BUT, if you are recovering from serious illness or trauma, the last thing you need to be dealing with is getting a bug and either hindering your recovery or barely maintaining it.  With that in mind, here are a few more tips that I believe help people to stay healthy (or healthier at least) in a world full of germs:
  • Get your flu shot. Patients and Caregivers alike should be getting a flu shot. There seems to be  a lot of controversy, and some resistance about how well it works for many (and I've even had people tell me it's a governmental conspiracy but we won't go there....). There are great resources all over the web that explain it, so if you are reluctant to get it, maybe read up on it before making a decision to not get it. I also say that if you aren't sure it does anything (prevents anything) so you think why bother? Well, I ask you this: if there was a small chance that you could help yourself or your loved one get better and stay safer, why wouldn't you want to decide to get it? People die from the flu every year; especially compromised people (sick people who can't fight germs as well because they are sick). I encourage you to find your own resources, but here is a link to an Ontario health and long term care website has some good info: http://www.health.gov.on.ca/en/public/programs/publichealth/flu/vaccine.aspx
  • Use a new hand towel in the bathroom each day, or even twice a day if there is a lot of traffic in through your house. If you have community nurses coming in, I would also suggest that you keep a roll of paper-towel on your bathroom counter, as they usually prefer to use that when washing for extra cleanliness.
  • Purchase a few masks (sometimes you have to get a whole box, but it's usually under $10). Ask a visitor/family member/caregiver who has a cold or virus to wear one of the masks when they are in the room you are, or when preparing food for you. It's handy to bring a few with you when going to medical appointments (I once had a very sick patient transfer attendant with a leaky nose in very tight quarters in the back of the transport unit - I would have loved a mask!). 
  • Purchase a box of gloves (medical gloves, but no need for sterile ones). The same caregivers who wear the mask can also wear the gloves when caring for you/touching items you have.
  • Use Lysol wipes (or some sort of comparable antibacterial cleaning wipes) for things like:
    • Wiping down counter before and after doing all medication preparations
    • Wiping down the phones, cell phones, remotes, and computers now and then
    • Wiping down door handles, cupboard handles, the squirt part of hand sanitizer pumps, and anything else that people touch a lot.
    • Wiping down Feeding pumps, your IV pole, IV pumps, and other medical equipment.
    • Don't be afraid to ask people (kindly) to wash their hands if you see them doing things like licking their fingers to flip through pages, or blowing their nose, or playing with their lip rings, etc. Be pleasant, but unapologetic. You need to stay healthy.
  • Keep antibacterial hand wipes beside the bed. I know that these days some say that you shouldn't use antibacterial soaps, wipes. gels, etc. all of the time, and I do agree, because we create all sorts of superbugs when we follow that pattern. That said, if you're sick, use them and ask others to use them. If you can't get out of bed very much, then you want them to be antibacterial after you've touched your wound/changed a dressing/touched something, spilled your medications on yourself...
  • Use thermometer covers. They are thin plastic covers that go on the end of a thermometer, so that you are protecting the thermometer from germs (nurses still wipe it down with alcohol wipes sometimes too, but it is still better than not doing so).
  • A steamer is fairly expensive, but seem to be all the rage right now. They are used for sanitizing handles, doors, floors, counters and more, and are great because you don't have to use chemicals (which also have the added bonus of having scents that are often not helpful). 
  • Regarding medications:
    • If you are trying to count how many pills you have left, or are trying to get just one pill out, try not to dump the pills out. The more you handle them, the more potential for germs
    • If you are using liquid medications and it is easier to pour some out into a container first, make sure that container is clean, not used with any other med, and ideally, don't dump the remnants back in the bottle. If you use a dropper for the meds, don't let it touch your mouth.
    • If you are using ointment on a wound/cut, etc., don't put it on the site directly. Put some ointment on a q-tip, gauze, even paper-towel, and apply it from there. That way you don't contaminate your tube of ointment.
  • When you come home from tests at a hospital/medical office... wash your hands and change your clothes before crawling into bed. Let the washing machine fight your germs while you rest:)
         I'm fairly anal about making sure that the house is as germ-free as possible, and I do all of the above. I am sure that there are many. many, many more ways to protect from germs, but I leave you with this - make sure that you are not living in a state of fear and being obsessive about ridding germs. There will always be germs to fight, and you can't win every battle with them. I would suggest trying to strike a balance between doing a reasonable amount of germ-free sentry duty that implements the types of suggestions above, while enjoying the people and the things around you - without constant fear of getting even more ill.

    Happy germ-fighting!

    Friday, January 14, 2011

    Tip #224 Bibs and Bobs: Greet visitors and stay healthy

         Sharing is great. Highly recommend it. Well, except during flu season! Okay, so still share, just not the germs.  Neither you nor your caregivers needs to get a virus ever, but especially during the recovery process. But, it is hard to ask people (or remember to ask people) to wash/sanitize their hands upon entering. So, we made it easier for our guests/practitioners... we put up signs.
         Now, I know signs can seem less than beautiful in a home (as opposed to an institution), but it's worth it. We have a "please sanitize your hands before entering- thank you" sign on the front door, and a second one on the table in the kitchen (which you have to go through to get to the bed in the living room). The sign in the kitchen is in a clear plastic frame so that it stands up, and stands out. The hand sanitizer is beside the sign on the table too, so no one forgets to use it on their way through. It works well, and people now do it without even thinking about it. What is fantastic too is that  delivery people are doing the same, even though they're not aware of what illness is in this house. Hooray!
         Aside from protecting germs from others from coming into your home, hand sanitizer is also good for  use at the bedside.  Anytime you touch your wound (for example) you should hand sanitize. The same is to be said of an infection that you may have etc. it's good of you to protect others from your germs if relevantt.  I keep wet ones (hand wipes) at the bedside and use them before eating etc. to keep my hands from falling off out of dryness but use the hand sanitizer as well when necessary.
          Just one last note on the use of antibacterial hand sanitizer: they are not all created equal. The ones you usually pick up in the grocery store are not always the hospital grade sanitizers. In normal life this isn't all that important, but if your immune is compromised because of illness, or stress from caregiving, then the type/use of sanitizer is relevant.

    Thanks for taking the time to read this. Happy sanitizing!

    Saturday, November 20, 2010

    My First Post - Hello World

         Welcome! Thanks for reading my first post! I am writing this blog because I want people to have a greater quality of life when recovering at home (which extends to family members and caregivers too). I want to equip people with practical tools that are easy to implement, and that (ideally) can be tailored to any situation. 
         Why you ask (or maybe you don't, but I'm going to tell you anyways...lol)? Well, for the last two-and-a-half years I have been very ill (more on that later), and have been in a hospital bed in my living-room. I've spent most of each day in that time coordinating my own rehab and finding and working on gaps in service that I never knew existed. I have needed to use my experience as a Kinesiologist, as a patient, and as caregiver in order to get the care that I need. And every time I do that, it makes me wonder how people get the care that they need to recover well at home if they are not experienced in any of those categories (or even in just one of them). Now that my health is improving, I would like to share with you what I have learned in the hope that it might be of use to you. I'd also like to share a lot of tips on how to be more comfortable and functional, and things that will help you to have to a better quality of life whether you are a caregiver or one who is recovering.
         Finally, the last reason for this blog? I am looking forward to sharing some of the bizarre happenings since I've been ill. Laughter is the best medicine after all! Have you ever been in a hospital bed in your living-room at 7pm and have your physiotherapist use her body to shield you both because for some odd reason there is a bat in the house swooping over your heads repeatedly? Or a complex care hospital declare you too complex for care? No? Well, welcome to my world! Every day here seems to have a little bit of crazy - and ironically I think it is that that helps us stay sane!
         Well, thanks for getting this far and reading my first post. I am so excited about this - please bare with me if I stumble a bit... I've never had a blog before! 
    Happy Reading!